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They Plucked Defeat From The Jaws Of Stupidity

The Coalition of NH Taxpayers was asked by a mother of a Crotched Mountain Rehab Center student to help keep her 17 year old handicapped son, who is non-verbal, the mental age of between 24 – 36 months, has an electronic seizure device planted in his body to control the nine different seizures he has, needs help with all aspects of going to the bathroom, and has issues with swallowing solid food, to help keep him in the rehabilitation professional center rather than let him be “mainstreamed” into a special life skills program as the Hillsboro/Deering school district wants.

Our taxpayer group looked at this as an opportunity to see what costs are involved in what is known as “out of district placements” because these expenses are often huge portions of any school budget, so we said yes. It also looked fishy as well. Why would a public school want to be involved in the minute by minute care of such a student? And how often do you get a chance to review all the costs and documents involved in a transition like this? So far it seems like a financial loser for the district to attempt this on its own.

I went on April 9, to a transition meeting at the H/D school regarding the transition protocols for Joel thinking it was about putting together a plan for bringing Joel to the school. No it wasn’t. It was more or less a done deal. Any chance at the mother having input as to the transition were pretty much ignored and a final draft of our meeting was sent to the mother a short time after.

The transition team wanted to bring Joel in to H/D two days week and leave him where he was for three. This is about as disruptive as you can get with a person like Joel who needs structure and familiar faces. I thought, as the mother pointed out it was not a good plan.

But what we did do at this meeting was set up a meeting with the Hillsboro/Deering transition team to go to Crotched Mountain and check it out – all day was the plan. I was there when we set up the meeting with CM by speaker phone. The H/D crowd was excited about going.

But the "Life Skills Team" showed up 2 hours and 45 minutes late and because of that were not able to mix in with Joel and the other students he was with as it would be disruptive to all the students. The H/D team tried to convince the CM staff to just let them sneak in for a look but were told it was not advisable. They did get to see him for about 15 minutes. CNHT Director Johnna Gryzwcz drove to CM to attend this 10 am meeting but could only wait so long and had to leave before the H/D crew showed up.

And then came Friday May 2, the first transition test day where Joel, in his wheelchair-like stroller, was supposed to see for the first time the new school he would be attending.

Some of Joel’s current CM staff was there, as was the H/D “Life Skills Team” and two CNHT Directors, Johnna Gryzwacz and Jane Aitken. Jane and Johnna have some background with these situations from family experiences and employment.

The Hillsboro/Deering Life Skills Team finally got their wish to have Joel come to their school. But it did not pan out as well as they hoped.

Joel went into a seizure that caused the Hillsboro Rescue Squad, after a 30 minute delay because they were on another call, to pick him up, IV in arm, and take him to the Concord Hospital where he was treated until 2 pm.

Nice going Hillsboro/Deering SAU #34. You got your way.

Posted on Tuesday, May 6, 2008 at 05:56AM by Registered CommenterEd Naile | Comments7 Comments

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Reader Comments (7)

I think it's time people examine the source of our mandates in the public schools in this country.

They would be very suprised and I hope, angry enough to do something about it.

So much for local control...
May 6, 2008 | Unregistered CommenterJane Aitken
Ed,

BTW... what do the actual $$ come out to when you take the additional staff that will be hired by H/D to care for Joel? And is the school on the hook for the hosptial stay that they induced for Joel?

Given that are shools are staffed with 'professionals' who have the lowest average SAT scores of all students graduating from college, it is surprising the Life Skills team has any credible 'skills.' They sure did not show it in this case.
May 6, 2008 | Unregistered Commenterdave
Ed, great article and right on the money. This past year I had the honor of being one of the Budget Committee reps to meet with the special ed department of Merrimack's school district.

Special Ed really has become a double edge sword. On one hand most schools really do want what's best for kids outside the norm who need the special attention but at the same time they have to answer to local tax payers who sometimes cannot afford it when costs for just a few students alone add up sometimes into the million dollar plus range. Such a burden becomes even greater when placed on smaller towns.

The other negative is that when a town does actually do a good job in meeting the needs of the special ed children they end up becoming magnets for others placing an even greater burden on the local tax payers (since state and fed government leave most of the burden on the locals despite the mandates they place on special ed).
May 6, 2008 | Registered CommenterRichard Barnes
Why don't the newspapers investigate this kind of thing?
May 6, 2008 | Unregistered CommenterPity the Fool
And let's not forget, any student whether special needs or not is only entitled to an adequate education. Nothing more. This would certainly be less, not to mention not safe for Joel.

Thank you Ed, Johnna and Jane for all your help in this. There are too few people like you guys out there.
May 6, 2008 | Unregistered CommenterJoel's Mom
I will add my cynical 2 cents so take it for what it's worth.

Special Ed is just another tool (sacred cow) to take away responsibility from the School Board and citizens. All are complicit but the facts are that once an Individual Education Plan (IEP) is written for a “Special” student, the “Special” folks show up in front of the Board and say "Stick em up... this is a robbery!" and the Board's only alternative is to empty their pockets or go to court or jail since IEP's are part of a federally enforceable plan. Granted the feds don't pay much of the “Special” bill, but just enough to enforce the stick up. The Boards are part of this because they can shrug their shoulders and send you the tax bill. And don't think you can get out of this by refusing the fed's dollars. Turns out the “Special” laws in NH are even stiffer.

Ever wonder why more and more kids are coded “Special”? Experts tell me the % should be less than 10% and that is generous. A lot of districts in NH are at twice that and the goal is 100%. At that point all control over the budget is taken from the Boards and citizens.

Bottom line is that most Boards really don’t want to listen to the Taxpayer and this is just another way to pass the buck.

And don’t get me started on why schools encourage more and more athletic teams to use as sacred cows in the next budget fight. I wonder how many IEPs mandate a school sport?
May 7, 2008 | Unregistered Commenterdave
Bureaucracies are incapable of love. Pettiness, vanity, deceit and outrageous arrogance are all commonplace in bureaucracies. But not love.

Ask Hope Nardone.
May 7, 2008 | Unregistered CommenterRowland

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